As a charitable organization, the UHF depends upon your generosity to fund our various programs. We warmly thank you for your support.
Many Thanks for 2013 and Looking Forward to 2014
Our deepest gratitude goes to the many companies who supported the UHF during 2013. You helped make all of these great events possible. Be sure to mark the dates for these events on your 2014 calendar and plan, once again, to join us for all the fun a new year will bring. (Read more for the new calendar dates, a list of our sponsors, and photos from the events.)
UHF Podcasts and Vodcasts:
An Educational Resource Available 24/7
As part of its ongoing commitment and effort both to expand and to tailor its educational offerings to the needs of the community that it serves, the Utah Hemophilia Foundation has produced a series of educational podcasts and vodcasts focused on various facets of the treatment and management of bleeding disorders. Among the topics of vodcasts and podcasts currently in the UHF library are:
Updates from the IHTC:
My name is Sarah Diederich....The Hemophilia Treatment Center is working to create the best patient care available to those affected with hemophilia....My role in this collaboration is the Family Partner for the group....In the beginning of this process, I will admit that I was slow at giving my full opinion on the matters that they were discussing. These were my doctors and who was I? But I found that all of my input was greatly appreciated and needed to help the Center move forward with new ideas successfully. I soon came to realize that I was one person in the grand spectrum of our community and everyone’s experiences can vary from person to person. That is where the Utah Hemophilia Family Neighborhood Facebook page started. (Read more...)
Parents Empowering Parents (PEP) on the Horizon
We are excited to announce that we were once again awarded a grant for the “Parents Empowering Parents” (PEP) training and have scheduled it for March 28-30, 2014 at the University Marriott in Salt Lake City. PEP is a program for parents of children with bleeding disorders. The training consists of a weekend of workshops with other parents, as well as staff members from the Intermountain Hemophilia and Thrombosis Center (IHTC). (Read more...)
Fall & Winter SPLORE Events
Explore the beauty of the Wasatch Mountains and join us for a private trip! We offer activities including snowshoeing, cross country skiing and backcountry skiing to fit any group and ability. Anyone can join! We also offer a six-week "Rock On" indoor climbing program, open to any child with a disability and their siblings. (Read more...)
Diane and Darin Walker recently became proud grandparents! Parents, Jonathan and Amanda, are doing well and enjoying their son, Isaac, born in August. Congrats!
Kyler Harris and Caulin Stoker represented the UHF in CSL Behring’s annual “Getting in the Game Junior National Championship;” Held in Phoenix, Kyler and Caulin were able to participate in clinics to learn the fundamentals of baseball or golf, the importance of physical fitness and taking care of their bleeding disorder. Kyler was able to display his baseball talents in this competition and was crowned National Baseball Champion. Congratulations to Kyler and Caulin for representing Utah so well!