Utah Hemophilia Foundation

As a charitable organization, the UHF depends upon your generosity to fund our various programs. We warmly thank you for your support.

Excerpt:  There were times I felt like I was only one with hemophilia and that no one cared or even knew how I felt. I now know that is not true. There are several people out there in the world today that want to help you and me. Hemophilia can tear you down physically and mentally. We all go through this life trying to find ways to fit in and be normal. We all have battles; we all want to be understood. I consider my hemophilia a blessing because without it, I would not be the young man I am today….Despite my rough beginning and bad days, my hemophilia does not stop me from living my life to the fullest. I do not want others to feel the same way I have felt. When someone has hemophilia, I believe there are two types of people: the first person knows they have hemophilia, but they keep to themselves and try to push it out of their lives and out of their minds; while the second person accepts their hemophilia and finds ways to help others. We all bleed the same color. Everyone should feel accepted and understood. (read more…)

_Come experience Hollywood (or should we say “Valorwood”) like you never have before. Camp begins the afternoon of July 30th and goes through August 3rd. Send in your “portfolio” (a.k.a. camp registration) to your “agent” (a.k.a. the UHF) so that we can book your stay. Forget Beverly Hills, we’ve got “Wapiti Hills” and all its amenities just waiting for you. To read more about camper registration, teen leadership information, volunteer opportunities, and/or to download the camp applications, documents and forms, please click here.

It’s fun, it’s a fest, it’s for the whole family—it’s the UHF Family Fest & Resource Fair, a chance for families from around the state to gather for networking and learning from professionals in the bleeding disorders community. There will be Industry displays with information about the latest products and services in caring for bleeding disorders. Highlights of this year’s event will include a Friday night presentation by a volunteer who visited Africa and climbed Mt. Kilimanjaro—all to call attention to bleeding disorders. In addition to industry displays on Saturday, “mini” workshops and discussion groups will be presented by professionals from around the country. (read more…)

_The Board of the Utah Hemophilia Foundation is proud to offer scholarships for the 2012 - 2013 academic year. All applicants will be notified of scholarship decisions by June 30th. Scholarships are for members of the bleeding disorders community served by the Utah Hemophilia Foundation and/or the Intermountain Hemophilia & Thrombosis Center in Salt Lake City, including those who have a bleeding disorder, their spouses, siblings, children, and parents. Materials must be mailed to the Foundation offices and postmarked by May 18th. To read more or to download the application, please click here.

_Running, walking, feeling good, raising money, winning prizes—it’s all for a good cause. Registration is on for the 5th Annual BLOODRUN 5K. Go to www.bloodrun.org to register. For only $17, you can enjoy the fun of the BLOODRUN and get all the swag. But you have to register soon! The entry fee goes up after May 17th so RUN to get online now and register.

You can also help the UHF raise even more money, by joining the craze to Support a Runner. Ask friends and family to sponsor you in the BLOODRUN by making donations to the UHF. Runners who raise $100 or more will receive a deluxe running shirt, available only to those who accomplish this amazing fundraising feat. And/or you can adopt a FLAMINGO… A fleet of fantastically fanatical fake flamingos have flocked to the UHF just in time for the BLOODRUN. For $10, you can adopt one of these colorful plastic flamingos from the UHF (and then the fun begins). You then get to place the flamingo in the yard of a friend or neighbor to encourage them to donate a minimum of $10 to the UHF. (read more…)

_The IHTC, in collaboration with the Utah Hemophilia Foundation, was proud to sponsor a successful Parents Empowering Parents weekend, March 23-25, 2012. Five couples participated in this session, and it was a very empowering experience for everyone involved…. The IHTC was also very pleased to involve our Medical Home Neighbor Parent Partners in the PEP weekend. Sarah Diederich has lots of insight into growing up in a home with a sibling with hemophilia, and also now being a mom of children with hemophilia. She has a great interest in meeting and mentoring families with bleeding disorders, so please feel free to contact her at 801-541-9197. Cayr Curtis is also a parent partner and, although disappointed that she could not attend the PEP weekend, is also very interested in meeting and connecting with families. Cayr can be contacted at hemoparentpartner@hotmail.com. In addition, the Parent Partners are administering a FACEBOOK page and can be found at “Utah Hemophilia Family Neighborhood.” (read more…)

Splore guides outdoor adventure programs that bring together people of varying abilities for adventures that empower them to connect with Utah's great outdoors. We offer adventure programs year round, with summer activities including outdoor climbing, whitewater rafting, canoeing, hiking, and indoor climbing.

To learn more about our summer activities and our indoor rock climbing program, click here.

Congratulations to Sarah and Mario Alfaro, who had a baby in January. Their three sons will now have a little sister to spoil!

Congratulations to Brian Dudley who will be married this spring to LuAnn Reed. Welcome to the UHF family, LuAnn!