News Archive Feb 2010

Newsletter Archives - February 2010

April 1st Dine & Dialogue Event

The second UHF Dine & Dialogue education event in our series will take place on Thursday, April 1, from 6-8 p.m. at Boondocks Fun Center. Topics of discussion will include Insurance Transitions and Summer Safety. Supervised child care will be provided. Dinner is also included. This event is free to attend for bleeding disorder community members and immediate family. Our thanks to BioRx and Baxter for sponsoring this event. Please RSVP by the date indicated to the number on the invitation. If you have any questions, please contact us. Click here to view the event invitation.

Celebrating a Warm Chili Open

This year’s Chili Open was not so chilly (and that was not necessarily a bad thing). The event began with the traditional dinner and auction at the Grand America and ended with a winter carnival and game of golf at Wheeler Farm. We are grateful to the many members of the community and our industry partners, who participated by making donations to the auction at the Grand America, and those who participated and/or volunteered. In all, through sponsorships, silent auction prizes, raffle ticket sales and donations, the UHF anticipates we will have raised about $70,000 (read more...)

Voices: Never Give Up
by Stephan Graves

Excerpt: I was at the point where I couldn’t even run anymore. I was limping around all the time and my ankles were in a lot of pain. The doctors tried casting them thinking that “immobilization was the key to recovery.” My dad finally said enough was enough. He knew that my muscles needed to be built up in my legs and that my ankles were arthritic because they were not moving from being immobilized too much. As soon as the casts came off he gave me a shot of factor VIII, took me out with tennis shoes on, and we played baseball and football. I hated him at first. I thought he was being mean. I would give up, telling him I couldn’t run because it hurt. He would push me even harder, telling me, “Don’t you dare give up. I won’t let you quit. Now quit your whining and let’s play some ball.” (read more...)

Save the Date for the UHF Gala on Sept. 13th

The Utah Hemophilia Foundation will be holding a Gala at La Caille on September 13th. Mark your calendars now, as this will be an evening you won’t want to miss. In addition to an elegant dinner, the Gala will also include an auction and an interactive murder mystery theatre show.

Introducing the Dine & Dialogue Program

With a view to further expanding and diversifying its educational offerings, the Utah Hemophilia Foundation and its industry partners are jointly presenting a new educational series entitled Dine and Dialogue. The Dine and Dialogue events, which are scheduled throughout the year, consist of dinner and a presentation by health care experts on some aspect of the treatment and management of a bleeding disorder.(read more...)

Become a Fan of the Foundation on Facebook

It’s official. The Utah Hemophilia Foundation has joined the realms of the Online Facebook world. Become a fan and watch our UHF 50th Anniversary video as well as other videos about the Foundation and bleeding disorders. Who knows, you just might catch a glimpse of yourself. Our Facebook group will also provide another outlet for social networking and help you stay up to date on the latest Foundation events. It’s simple to join. (read more...)

Thanks for Your Support to the UHF in 2009

The Utah Hemophilia Foundation wishes to warmly thank the many businesses and individuals whose monetary donations supported us throughout 2009. Thank you for helping us to achieve our goals of education, advocacy and support to the bleeding disorders community of Utah. Click the "read more" link to view the list of donors for 2009. (read more...)

Update from the Intermountain Hemophilia & Thrombosis Clinic at Primary Children's Medical Center

As many of you are aware, because the IHTC is a partially federally funded hemophilia treatment center, it is eligible to participate in the Federal 340B Factor Program. In addition to providing you with a discounted price on all factor products, all funds realized through the “Factor Program” go toward patient care provided through the IHTC. An example of the use of these funds would be to annually fund the outreach clinic to southern Utah….If you are interested in participating in the 340B Factor Program, or if you have additional questions about the program, please feel free to call Susan Earl, MSW (801-662-4557)…to participate in the 340B Factor Program, it is a federal requirement to attend your annual comprehensive clinic visits. (read more...)

2010 UHF Calendar of Events

Visit our Events page to view the updated Utah Hemophilia Foundation calendar of events for 2010.

Thank You, Paula

We would like to thank Paula Bell for her past service as a Board Member for the Utah Hemophilia Foundation and wish her well in her endeavors for Mills Publishing and the Sugarhouse Rotary Club. Thanks again, Paula, for your time and dedication to the Foundation.

Community Corner

The UHF community is buzzing with news! From Brian and Laura Chapman's new baby; to the Montgomery family moving to West Virginia; and our Youth Representative, Julia McDougal's engagement, the community has been busy, busy, busy! Click here to read more.

Utah Hemophilia Foundation