Newsletter Archives - February 2011
Dine and Dialogue at Faustina Restaurant
The UHF Dine & Dialogue program had a successful debut in 2010, and we are excited for the fantastic slate of Dine & Dialogue events set for 2011! Faustina Restaurant* is the setting for our February 24th Dine & Dialogue, sponsored by Pfizer. Come enjoy the comfortable but exquisite cuisine and learn more about healthy living with a bleeding disorder. Our topic for the evening will be “Healthy Lifestyle Choices: The Role of Medication Adherence,” and our speaker will be Susan Zappa**, RN, CPN from Cook Children’s Medical Center in Fort Worth, Texas.(read more…)
Voices: My Journey by Lana Henrie
Excerpt: Growing up in Annabella, a small town in central Utah, I not only didn’t know of anyone who had hemophilia, but I had never even heard of this disorder. The first time I ever heard the term “hemophilia” was when our son was diagnosed at six months of age. Since that time, hemophilia has played a significant role in our family’s life. All of the questions, bewilderment—and, yes, devastation—followed as we learned about the strange and complicated journey we would now be embarking on.(read more…)
Climb on Over to the UHF Teen Dine & Dialogue at Momentum Climbing Gym
Save the date for February 17th, the Utah Hemophilia Foundation will be hosting a special Teen Dine & Dialogue, sponsored by Bayer HealthCare, at Momentum Climbing Gym in Sandy. The presentation is entitled, “Living Fit! A Joint Effort.” This program is designed to promote fitness and healthy lifestyles and will feature Heidi Lane, a physical therapist specializing in bleeding disorders who works at Primary Children's Medical Center. Heidi will discuss exercise and lifestyle goals with an emphasis on teens in the bleeding disorder community. A light dinner will be served during Heidi's presentation and, afterwards, the UHF teen participants will have supervised use of the climbing gym complete with shoe rentals. For information on RSVP-ing and to view an event flyer for additional details, please click here.
Thanks for Your Support to the UHF in 2010
The Utah Hemophilia Foundation wishes to warmly thank the many individuals, families and companies for their financial contributions throughout 2010. Thank you for helping us to achieve our goals of education, advocacy and support to the bleeding disorders community of Utah. To view a list of our financial supporters, please click here.
2011 UHF Calendar of Events
The Utah Hemophilia Foundation is proud to present our 2011 Calendar of Events. There's something for everyone this year: First Step Activities, the Men's Health Group, Teen Retreat, Camp Valor, Family Fest & Resource Fair, Holiday Party, Adult Retreat, and several Dine & Dialogue events. These are just a few of the varied offerings the Foundation has in store for you. To view the complete calendar, please click here. Our First Step Activity Was a Zoo!
Oh, wait—what we really meant to say was our First Step meeting was AT the zoo! On a GORGEOUS Fall Saturday last November, about thirteen families—with little ones with bleeding disorders—met at This is the Place State Park for networking, lunching, and having fun. We were treated to an introduction of the First Step Program by our “Super Moms” (and one Dad): Kristy Fowler, Krisdee Nelson and Derek Nelson. During group introductions, parents were able to share their top concerns for their family and/or children in dealing with a bleeding disorder (for a list of these concerns, please view to complete article by clicking here). Team members from the IHTC were also available to meet and connect with families. The fun continued after a catered lunch when families headed across the street for a trip through Hogle Zoo. (read more...)
From the IHTC: We've Heard You and Are Working to Improve Both Your Access to Care and to Provide You Highest Value Care Possible
To better meet the needs of our patients and families with bleeding disorders, the IHTC at Primary Children’s Medical Center partnered with the UHF to conduct focus groups during the Adult Retreat last fall. The consumers were grouped into one of three focus groups: von Willebrand disease, adult hemophilia, or families of pediatric patients. To maintain confidentiality and anonymity, the results of the focus group were compiled and summarized for the IHTC by the research department at Intermountain. Focus group participants explored perceptions of the Intermountain Hemophilia and Thrombosis Treatment Center (IHTC). Both IHTC relative limitations and patient expectations were discussed. (read more…)
Community Corner
Wedding bells will be soon ringing for the Talbot family. Lindsie Talbot is set to wed Daniel DeWitt on February 10th. Best wishes on your new life together!
Congratulations go out to Chris O’Neill, Jr. (son of UHF Board Member, Chris O’Neill, Sr.) who will also be married on February 10th. Must be a lucky day for love! |
|
